Paralysis Resource Center
The Paralysis Resource Center (PRC) grant was awarded to the Christopher & Dana Reeve Foundation. The mission of the Christopher & Dana Reeve Foundation in carrying out the PRC activities aligns well with ACL’s mission and provides important new programmatic opportunities for persons with disabilities and older adults. The PRC provides comprehensive information for people living with spinal cord injury, paralysis and mobility-related disabilities and their families. Resources include information and referral by phone and email in multiple languages including English and Spanish; a peer and family support mentoring program; a military and veterans program; multicultural outreach services; free lending library; quality of life grants; and a national website.
- A Resource Center with dedicated Information Specialists, a resource-rich website containing customized materials including fact sheets, educational and motivational videos and other materials and a national clearinghouse library of materials available at no charge to the public;
- A comprehensive Outreach Program dedicated to increasing the quality of life of individuals from underserved and minority communities including the African American, Native American, Hispanic, Asian American, LGBT and rural communities;
- A National Peer and Family Support Program that provides trained and certified peer mentors to assist individuals living with paralysis and related mobility impairments, their family members and caregivers;
- A national program that successfully translates activity-based therapies including treadmill therapy from academic clinical centers to community fitness and wellness centers to improve the physical health and functional ability of individuals with spinal cord injuries and other paralyzing conditions;
- A national program of Quality of Life grants made to paralysis-focused nonprofit, community- based organizations that enables them to implement programs aimed at improving the health, wellness and quality of life of people living with paralysis and other physical disabilities, including a new innovative High Impact Assistive Technology Grant Program to state programs funded through the State Assistive Technology Act Program;
- National surveillance that increases understanding of the true impact and burden of paralysis by disease category, injury, and quality of life indicators that are used to shape and revise PRC programs and services as well as provide accurate and timely information to other disability organizations, including federal agencies and;
- A public policy program that provides outreach and education to elevate the voices of people living with paralysis and their families through education and outreach efforts in the areas of community-based long-term services and supports, enhanced family caregiver support, health insurance and access to rehabilitation technologies.
Christopher & Dana Reeve Foundation
636 Morris Turnpike,
Short Hills, NJ 07078
Margaret Goldberg, Vice President, Policy and Programs
Phone: (973) 379-2690 Ext 7206 or (800) 225-0292
Phone: (202) 357-3444