ACL Funded Resource Centers

Administration on Disabilities (AoD)

AoD-funded resource centers provide information primarily geared toward professionals; however, several of the following resource centers have information for consumers as well.

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Access to Integrated Employment: National Data Collection on Day and Employment Services for Citizens with Developmental Disabilities

Grantee: University of Massachusetts
Contact: John Butterworth, john.butterworth@umb.org, 617-287-4357
Website: www.statedata.info
Audience: The general public, people intellectual and developmental disabilities, family members, professionals

The longitudinal project describes day and employment services nationwide for people with I/DD by studying the effectiveness of state developmental disabilities agencies and vocational rehabilitation agencies in promoting full inclusion; describing national trends in the employment and economic status of youth and adults with I/DD on a state and national basis; and highlighting practices and outcomes in the transition from school to employment. The project also implements a website illustrating service system investment in day and employment services, and www.realworkstories.org a website featuring successes of youth with I/DD in paid jobs in their communities.

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Autism NOW

Grantee: The ARC of the US
Contact: Karen Wolf-Branigin, wolf-branigin@thearc.org, 202-534-3711
Website: www.autismnow.org
Audience: The general public, people with autism and other disabilities, family members, professionals

The website provides resources and information related to community-based services that support independent living and self-determination treatment protocols that promote community-based experiences (e.g. education, employment, recreation, transportation, early intervention and child care), and evidence-based interventions for ASD service providers, researchers, families, and people with ASD. The website also offers YouTube videos providing answers to questions asked by the public.

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Family Information Systems Project

Grantee: University of Minnesota
Contact: Sheryl Larson, larson072@umn.edu, 612-624-6024
Website: ici.umn.edu/index.php?projects/view/142
Audience: The general public, people with intellectual and developmental disabilities, family members, and professionals.

The project will establish a comprehensive program of annual data collection from states on family support, and conducts longitudinal data analysis, policy studies, and dissemination activities to better understand and promote effective supports for families and individuals with intellectual and developmental disabilities (I\DD) who direct their own support. The data gathered will be used to help federal and state agencies understand the current status and emerging trends in supporting families and individuals with I\DD living in homes of their own or with family members (including consumer direction). It will also be used to compare and contrast services and expenditures targeting the person with I\DD versus those targeting the family members with whom they reside, and to compare services for children versus services for adults with I\DD.

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Inclusive Transportation Resource Center

Grantee: Community Transportation Association of America
Contact: Charlie Dickson, dickson@ctaa.org
Website: www.transitplanning4all.org
Audience: Grantees, Aging and Disability Network, community transportation network, the public

Provide information, education and TA on development and maintenance of consumer direction in community transportation planning, development, implementation, and system improvement.

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Information and Technical Assistance for Councils on Developmental Disabilities (ITACC)

Grantee: The National Association of Councils on Developmental Disabilities (NACDD)
Contact: Donna Meltzer, 202-506-5813, fax 202-506-5846
Website: itacchelp.org
Audience: Councils on Developmental Disabilities

ITACC is a federally funded technical Assistance project awarded to NACDD to provide Training and Technical Assistance (T/TA) to State Councils on Developmental Disabilities. State Councils on Developmental Disabilities are charged with identifying the most pressing needs of people with developmental disabilities in their State or Territory. Councils work to address these needs through systems change and capacity building efforts that promote self determination, integration and inclusion for people with developmental disabilities. Under this grant, T/TA initiatives are identified and undertaken with the goal of improving Council performance, statutory compliance, and outcomes. The T/TA activities carried out under this grant are program specific and/or cross cutting to the Councils.

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National Data Measurement Project: National Core Indicators

Grantee: National Association of State Directors of Developmental Disabilities Services
Contact: Mary Lee Fay, mlfay@nasddds.org, 703-683-4202
Website: www.nationalcoreindicators.org
Audience: The general public, people with intellectual and developmental disabilities, family members, professionals.

The purpose of the program, which began in 1997, is to support National Association of State Directors of Developmental Disabilities Services (NASDDDS) member agencies to gather a standard set of performance and outcome measures that can be used to track their own performance over time, to compare results across states, and to establish national benchmarks. The project collects and maintains valid and reliable data about the performance of public developmental disabilities service systems. The data is collected by using Core Indicators (NCI), standard measures used across states to assess the outcomes of services provided to individuals and families. Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, and health and safety. From 2011-2016 AIDD will contribute grant funding to support the expansion of the program to an additional five states per year.

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National Gateway to Self-Determination

Grantee: UMKC Institute for Human Development (UCE)
Contact: www.ngsd.org/everyone/contact-us, 816-235-1770, fax 816-235-1762, TTY 1-800-452-1185
Website: www.ngsd.org
Audience: University Centers for Excellence in Developmental Disabilities, self-advocates, family members, practitioners, researchers

This project supports a clearinghouse for resources, training, and information on promoting self-determination. The site provides a single access for self-advocates, professionals, policy-makers, families, and the general public on the current best practices and evidence based activities in enhancing self-determination in the lives of people with intellectual and developmental disabilities.

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Residential Information Systems Project

Grantee: University of Minnesota
Contact: Sheryl Larson, larso072@umn.edu, 612-624-6024
Website: www.rtc.umn.edu/risp/build/index.asp
Audience: The general public, people with intellectual and developmental disabilities, family members, professionals

This project is a longitudinal study of annual state-by-state and national statistics on residential services and supports for people with intellectual and developmental disabilities, focusing on funding for supports and services from a variety of sources, including public and non-public, Medicaid-funded and non-Medicaid-funded residential and supportive services. The project utilizes a large multistate database on individuals with developmental disabilities to examine the associations between personal characteristics, housing, financing and support models, state systems on inclusion, self-determination, satisfaction, and outcomes. It also conduct state policy and program surveys on key topics in residential and other community services. The data can be also accessed through a Build-a-Report tool allowing the public to customize reports.

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State of the States in Developmental Disabilities

Grantee: University of Colorado
Contact: Richard Hemp, rick.hemp@cu.edu, 303-735-0252
Website: www.stateofthestates.org
Audience: The general public, people with intellectual and developmental disabilities, family members, professionals

The project maintains a 35-year longitudinal record of revenue, spending, and programmatic trends in the 50 states, the District of Columbia, and the United States as a whole. The project examines the impact over time of federal and state fiscal policy, and illustrates important service delivery trends in the states in community living, public and private residential institutions, family support, supported employment, supported living, Medicaid Waivers, demographics, and related areas. Longitudinal data for fiscal years 1977-2011 are available on the State Profiles page. The new State Profiles each present six pages of data on I/DD spending, revenue and other program trends in each state and DC. Customized, state-by-state comparative data, also recently updated through 2011, are available on Create a Chart.

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Think College—College Options for People with Intellectual Disabilities

Grantee: Institute for Community Inclusion/UCEDD, University of Massachusetts Boston
Contact: www.thinkcollege.net/contact, 617-287-4300, fax 617-287-4352, TTY 617-287-4350
Website: www.thinkcollege.net
Audience: University Centers for Excellence in Developmental Disabilities, self-advocates, family members, practitioners, researchers

The Institute for Community Inclusion at the University of Massachusetts, Boston in collaboration with seven University Centers for Excellence in Developmental Disabilities (UCEDD) (Delaware, Minnesota, Hawaii, South Carolina, Tennessee [Vanderbilt], Ohio, California and the Association of University Centers on Disabilities (AUCD) have established a Consortium that will conduct research, provide training and technical assistance, and disseminate information on promising practices that support individuals with DD to increase their independence, productivity and inclusion through access to postsecondary education. The proposed Consortium will be the national resource for knowledge, training, materials, and dissemination about the participation of individuals with developmental disabilities in postsecondary education.

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Training and Advocacy Support Center (TASC)

Grantee: National Disability Rights Network (NDRN)
Contact: Curt Decker, 202-408-9514, fax 202-408-9520, TTY 202-408-9521
Website: www.tascnow.com
Audience: Protection and Advocacy Systems

Through the delivery of state-of-the-art training, technical assistance and networking, the Training & Advocacy Support Center (TASC) is designed to enhance the advocacy functions of the Protection & Advocacy (P&As) System and Client Assistance Programs (CAPs) in their efforts to protect the civil rights of persons with disabilities and prevent and/or remedy abuse and neglect of those who reside in institutions, other facilities and the community. Guided by the needs of the Network, TASC provides a broad range of training, technical assistance (TA), and networking to staff, Board, and Advisory Board members of the Network to build the capacity of P&A/CAP staff and organizations as a whole in order to accomplish the organizational mission.

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UCEDD Resource Center

Grantee: Association of University Centers on Disabilities
Contact: George Jesien, Ph.D., 301-588-8252
Website: www.aucd.org/urc/
Audience: University Centers for Excellence in Developmental Disabilities

The purpose of the UCEDD Resource Center is to improve program performance, statutory compliance, and program outcomes across the National Network of UCEDD’s. This Training and Technical Assistance (T/TA) project identifies and undertakes initiatives to support the improvement of UCEDD operations and performance, including the mandated core functions. The T/TA activities carried out under this contract are program specific and/or cross cutting to the UCEDDs.

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Last Modified: 8/11/2015