Disability and Rehabilitation Research Projects (DRRP) Program: Traumatic Brain Injury (TBI) Model Systems National Data and Statistical Center

View on Grants.gov
Title
Disability and Rehabilitation Research Projects (DRRP) Program: Traumatic Brain Injury (TBI) Model Systems National Data and Statistical Center
Opportunity ID
330446
Center
NIDILRR
Primary CFDA Number
93.433
Funding Opportunity Number
HHS-2021-ACL-NIDILRR-DPTB-0064
Funding Instrument Type
Grant
Expected Number of Awards Synopsis
1
Length of Project Periods
60-month project period with five 12-month budget periods
Project Period Expected Duration in Months
60
Eligibility Category
State governments,County governments,City or township governments,Special district governments,Independent school districts,Public and State controlled institutions of higher education,Native American tribal governments (Federally recognized),Native American tribal organizations (other than Federally recognized tribal governments),Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education,Nonprofits without 501(c)(3) status with the IRS, other than institutions of higher education,Private institutions of higher education,For profit organizations other than small businesses,Others (see text field entitled "Additional Information on Eligibility" for clarification)
Additional Information on Eligibility
States; public or private agencies, including for-profit agencies; public or private organizations, including for-profit organizations; IHEs; and Indian tribes and tribal organizations.
Foreign entities are not eligible to compete for, or receive, awards made under this announcement. Faith-based and community organizations that meet the eligibility requirements are eligible to receive awards under this funding opportunity announcement.
Estimated Award Date
Funding Opportunity Description

Background:

It is estimated that between 3.2 and 5.3 million Americans are living with disability as a result of traumatic brain injury (TBI). Approximately 2.5 million Americans sustain a TBI each year, and 288,000 of these injuries lead to hospitalization (Centers for Disease Control and Prevention, 2015; 2021).

NIDILRR supports a variety of research projects that focus on the wide range of needs of people with TBI. These projects include the TBI Model System Centers funded through NIDILRR's Model Systems Program. The TBI Model System Centers establish and carry out innovative projects for the delivery, demonstration, and evaluation of comprehensive medical, vocational, and other rehabilitation services to meet the wide range of needs of people with TBI.

The TBI Model System Centers have developed a national, longitudinal database (TBI Model Systems National Database) of information about the characteristics and life course of people with TBI. The TBI Model Systems National Database also can be used to examine specific outcomes of TBI. NIDILRR seeks to continue and build upon this important source of data by funding a National Data and Statistical Center for the TBI Model Systems that will maintain the TBI Model Systems National Database and improve the quality of information that is entered into it.

The TBI Model Systems National Database is a collaborative project with participation by all of the TBI Model System Centers. The data for the TBI Model Systems National Database are collected by the TBI Model System Centers. The Directors of the TBI Model System Centers, in consultation with NIDILRR, determine the parameters of the TBI Model Systems National Database, including the number and type of variables to be examined, and the criteria for including TBI Model Systems patients in the database. Further technical information about the SCIMS database can be found at the following website: https://www.tbindsc.org/Default.aspx.

To maximize the external validity of findings from the TBI Model Systems National Database, the TBI Model Systems Centers must achieve and maintain high rates of retention and successful follow-up with database participants. Accordingly, the central role of the TBI Model Systems National Data and Statistical Center will be to work with TBI Model System Centers to increase follow-up rates and ensure data quality.

The TBI Model Systems National Database contains a largely representative sample of the US population of patients that receive inpatient rehabilitation for TBI, with the exception that the TBIMS tends to treat a younger population (Cuthbert, Corrigan, Whiteneck, et.al, 2012; Corrigan, Cuthbert, Whiteneck, et.al., 2012). The racial/ethnic diversity of the TBI Model Systems population creates a vital technical assistance role for the TBI Model Systems National Data and Statistical Center. The TBI Model Systems National Data and Statistical Center will work with the TBI Model System Centers to ensure that the data collected from these populations are of high quality and that the data collection procedures used reflect sufficient knowledge about the cultural backgrounds of patient populations and research participants.

References:

Centers for Disease Control and Prevention (2021): Traumatic Brain Injury & Concussion: Data and Statistics. https://www.cdc.gov/traumaticbraininjury/data/index.html.

Centers for Disease Control and Prevention. (2015). Report to Congress on Traumatic Brain Injury in the United States: Epidemiology and Rehabilitation. National Center for Injury Prevention and Control, 1-72. https://www.cdc.gov/traumaticbraininjury/pdf/TBI_Report_to_Congress_Epi….

Corrigan, J. D., Cuthbert, J. P., Whiteneck, G. G., Dijkers, M. P., Coronado, V., Heinemann, A. W., ... & Graham, J. E. (2012). Representativeness of the Traumatic Brain Injury Model Systems National Database. The Journal of head trauma rehabilitation, 27(6), 391.

Cuthbert, J. P., Corrigan, J. D., Whiteneck, G. G., Harrison-Felix, C., Graham, J. E., Bell, J. M., & Coronado, V. G. (2012). Extension of the representativeness of the traumatic brain injury model systems national database: 2001 to 2010. The Journal of head trauma rehabilitation, 27(6), E15.

Priority--Traumatic Brain Injury (TBI) Model Systems National Data and Statistical Center
The Administrator of the Administration for Community Living establishes a priority for the funding of a TBI Model Systems National Data and Statistical Center that advances rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of people with TBI. To meet this priority, the TBI Model Systems National Data and Statistical Center's research and technical assistance must be designed to contribute to the following outcomes:

Maintenance of a national longitudinal database for data (TBI Model Systems National Database) submitted by each of the TBI Model System Centers. This database must provide for confidentiality, quality control, and data-retrieval capabilities, using cost-effective and user-friendly technology.
High-quality, reliable data in the TBI Model Systems National Database. The TBI Model Systems National Data and Statistical Center must contribute to this outcome by providing training and technical assistance to TBI Model System Centers on subject retention and data collection procedures, data entry methods, and appropriate use of study instruments, and by monitoring the quality of the data submitted by the TBI Model System Centers.
High-quality data collected from database participants of all racial/ethnic backgrounds. The TBI Model Systems National Data and Statistical Center must contribute to this outcome by providing knowledge, training, and technical assistance to the TBI Model System Centers on culturally appropriate methods of longitudinal data collection and participant retention.
Rigorous research conducted by TBI Model System Centers and all investigators who are analyzing data from the TBI Model Systems National Database. The TBI Model Systems National Data and Statistical Center must contribute to this outcome by making statistical and other methodological consultation available for research projects that use the TBI Model Systems National Database, as well as center-specific and collaborative projects of the TBI Model System Centers Program.
Enhanced continuity of the TBI Model Systems National Database. The TBI Model Systems National Data and Statistical Center must contribute to this outcome by establishing, implementing, and providing resources and mechanisms for continued collection of follow-up data from people who were enrolled by TBI Model System Centers that no longer receive Model Systems Program funding. These mechanisms must focus on continued collection of data from at least three TBI Model System Centers that were previously funded, but that have not received subsequent funding under the Model Systems Program.
Improved quality and efficiency of operations of the TBI Model Systems National Database operations through collaboration with the Spinal Cord Injury Model Systems National Data and Statistical Center, the Burn Model Systems National Data and Statistical Center, and the Model Systems Knowledge Translation Center.
Increased use and impact of the TBI Model Systems National Database through continued and enhanced collaborations with Federal and non-Federal partners, including collaborations that promote synergy with other common data elements initiatives.
Improved outcomes of the TBI Model System Centers through managing data, if requested, that are generated by TBI Model System Centers module research and TBI Model System Centers collaborative grant research.
Improved performance of the TBI Model Systems program by working with the TBI Model System Centers to develop and revise standard operating procedures that provide guidance for TBI Model System Centers operations.
Increased public accessibility of TBI data, ensuring the confidentiality and integrity of the database as well as promoting the use of the data to advance knowledge, in consultation with NIDILRR.
Ongoing access to the tools and resources of the TBI Model Systems National Data and Statistical Center. The TBI Model Systems National Data and Statistical Center must contribute to this outcome by cooperating and collaborating with the previous TBI Model Systems National Data and Statistical Center in order to ensure the smooth and orderly transition to a new data center grantee, if necessary. The new grantee, if applicable, must coordinate with NIDILRR and the previous grantee to ensure that the TBI Model System Centers maintain access to data center tools and resources during the brief transition period.

Award Ceiling
692500
Award Floor
685000
Due Date for Applications
Date for Informational Conference Call

Last modified on 03/24/2021


Back to Top