What do Older Adults and People with Disabilities Need to Know?
Your risk of serious COVID-19 illness may be increased
It is particularly important for you to avoid exposure and be aware of the symptoms and emergency warning signings. Not sure whether you should seek medical attention? CDC's Coronavirus Self-Checker tool can help you make decisions.
- Read more
Older adults and people with certain underlying medical conditions are at increased risk for COVID-19 illness. Residents of nursing homes or other long-term care facilities may also be at increased risk.
Risks from COVID-19 increase steadily as you age; it’s not just those over the age of 65 who are at increased risk for severe illness. This may be because immune systems change with age, making it harder to fight off diseases and infection. Older adults also are more likely to have underlying health conditions that make it harder to cope with and recover from illness.
Some health conditions identified by CDC that can increase your risk (see full updated list that was posted December 29, 2020 by CDC):
- Chronic kidney disease
- COPD (chronic obstructive pulmonary disease)
- Obesity (BMI of 30 or higher)
- Immunocompromised state (weakened immune system) from solid organ transplant
- Heart conditions, such as heart failure, coronary artery disease, or cardiomyopathies
- Sickle cell disease
- Type 2 diabetes mellitus
Based on what is known at this time, CDC has also issued a list of conditions that might put people at increased risk for severe illness from COVID-19, including:
- Asthma (moderate-to-severe)
- Cerebrovascular disease (affects blood vessels and blood supply to the brain)
- Cystic fibrosis
- Hypertension or high blood pressure
- Immunocompromised state (weakened immune system) from blood or bone marrow transplant, immune deficiencies, HIV, use of corticosteroids, or use of other immune weakening medicines
- Neurologic conditions, such as dementia
- Liver disease
- Pulmonary fibrosis (having damaged or scarred lung tissues)
- Thalassemia (a type of blood disorder)
- Type 1 diabetes mellitus
This CDC graphic describes Risk for Covid-19 Associated Hospitalization Related to Underlying Conditions
Watch for symptoms and emergency warning signs
COVID-19 symptoms include cough, shortness of breath, or at least two of the following:
- repeated shaking with chills
- muscle pain
- sore throat
- new loss of taste or smell
If you develop emergency warning signs for COVID-19 get medical attention immediately. These include:
- Difficulty breathing or shortness of breath
- Persistent pain or pressure in the chest
- New confusion or inability to arouse
- Bluish lips or face
This list is not all inclusive. Consult your medical provider for any other symptom that is severe or concerning.
Stay safe -- and protect others!
Everyone, regardless of age or disability, should follow CDC's recommendations to help prevent the spread of the virus.
- How to prevent exposure
The virus is thought to spread mainly from person-to-person, between people who are within about 6 feet of each other. Respiratory droplets produced when an infected person coughs, sneezes or talks can land in the mouths or noses of people who are nearby. It is possible that these droplets may also be inhaled into the lungs. Learn more about how the virus spreads.
- Stay home as much as possible.
- Keep your distance! Stay at least six feet away from others when you must leave home
- Cover your mouth and nose! CDC issued updated guidance on the Use of Cloth Face Coverings and Considerations for Wearing Cloth Face Coverings. CDC recommends wearing such coverings in public settings (e.g., grocery stores and pharmacies), especially when social distancing measures are difficult to maintain.
- Click HERE to view CDC's February 2021 "maximizing mask fit" guidance. CDC's Improve the Fit and Filtration of Your Mask to Reduce the Spread of COVID-19 page offers some suggestions to maximize the performance of cloth and procedural masks and this video shows how you can "knot and tuck" a procedural mask to improve fit.
- CDC has instructions for making your own mask and in this video, Dr. Jerome Adams, former U.S Surgeon General, shows you how.
- Important notes: (1) N-95 respirators are NOT recommended. Those are critical supplies that must continue to be reserved for healthcare workers and medical first responders. (2) CDC advises that cloth face coverings should NOT be worn by children under the age of 2 or anyone who has trouble breathing, is unconscious, incapacitated, or otherwise unable to remove the mask without assistance.
- On February 5, 2021, The U.S. Department of Transportation issued the following notice: Accommodation by Carriers of Persons with Disabilities Who Are Unable to Wear or Safely Wear Masks While on Commercial Aircraft - Notice of Enforcement Policy
- Wash your hands often with soap and water for at least 20 seconds, especially before eating and after going to the bathroom, blowing your nose, coughing, sneezing, or touching surfaces in public places.
- Avoid touching surfaces in public places – elevator buttons, door handles, handrails, etc. Cover your hand if you must touch something.
- Avoid touching your mouth, nose, and eyes.
- Clean and disinfect your home regularly, especially frequently touched surfaces like tables, doorknobs, light switches, handles, desks, toilets, faucets, sinks & cell phones, as well as visibly dirty surfaces. The virus that causes COVID-19 may survive for hours or days on a variety of surfaces.
- See EPA's list of disinfectants that are effective against COVID-19 (May 14, 2020)
- Avoid all non-essential travel including plane trips, and especially avoid embarking on cruise ships.
- Stay home when you are sick, and avoid close contact with people who are sick. Comply with local social distancing recommendations!
- Cover your cough or sneeze with a tissue, then throw the tissue in the trash.
- There are many ways you can safely help during the COVID-19 emergency. FEMA has some suggestions here.
- CDC guidance for after you are vaccinated
As of July 27, 2021, CDC advises that If you are fully vaccinated, you can participate in many of the activities that you did before the pandemic. To maximize protection from the Delta variant and prevent possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission. CDC recently issued this updated mask guidance.
- CDC's guidance for specific populations
- Guidance for people who are at higher risk for severe illness. Based on currently available information and clinical expertise, older adults and people of any age who have serious underlying medical conditions might be at higher risk for severe illness from COVID-19.
- Guidance for older adults about their potential risks during the pandemic, symptoms, developing a care plan, and more.
- Guidance for people with disabilities - addresses potential risks during the pandemic, how people with disabilities can protect themselves, and how to prepare.
The updated guidance recommends expanding indoor visitation in nursing homes overall, while adhering to the core principles of COVID-19 infection control, including maintaining physical distancing and conducting visits outdoors whenever possible. The updated guidance also:
- Emphasizes that compassionate care visits and visits required under federal disability rights law should be allowed at all times, for any resident;
- Clarifies that testing/vaccination should not be required as a condition of visitation - this applies to representatives of the Office of the State Long-Term Care Ombudsman and protection and advocacy systems; and
- Notes that questions about or issues related to enforcement or oversight of the non-CMS requirements and citations referenced in the section about federal disability rights laws and protection and advocacy programs should be referred to the HHS Office for Civil Rights, the Administration for Community Living, or other appropriate oversight agency.
- CDC guidance for caregivers, direct service professionals, and group homes
- Guidance for Direct Service Providers, Caregivers, Parents, and People with Developmental and Behavioral Disorders
- Guidance for caregivers of people living with dementia
- Guidance for direct service providers
- Guidance for group homes for people with disabilities
- Guidance for shared or congregate housing
- Considerations for owners and operators of multifamily housing including populations at increased risk for complications from COVID-19
- For people with disabilities or medical conditions
There are some additional things people with disabilities can do to prepare during the COVID-19 outbreak:
- Plan what you will do if you or your direct support provider get sick. Create a contact list of family, friends, neighbors, and local service agencies that can provide support in case you or your direct support provider become ill or unavailable.
- Plan at least two ways of communicating from home and work that can be used rapidly in an emergency (e.g., landline phone, cell phone, text-messaging, email). Write down this information and keep it with you.
- Have enough household items and groceries so that you will be comfortable staying home for a few weeks, at least a 30-day supply of over-the-counter and prescription medicines, and any medical equipment or supplies that you might need. Some health plans allow for a 90-day refill on prescription medications. Consider discussing this option with your healthcare provider. Make a photocopy of prescriptions, as this may help in obtaining medications in an emergency situation.
Stay Connected and Engaged
Staying at home and social distancing are critical to avoiding exposure to the virus, but social isolation and loneliness can be a devastating result. In fact, a study showed that they can be as bad for your health as smoking 15 cigarettes a day. There are many ways to stay engaged, active and connected--both with and without technology. These resources can help you get started. (Some of them were created with older adults in mind, but the suggestions and resources they offer are good for people of any age.)
- Engage Virtually - Ideas from ACL
Created as part of our celebration of Older Americans Month, this tip sheet provides ideas for socializing and exploring the world through technology, as well as some low-tech suggestions.
Engage Virtually: Tips for keeping older adults connected. Please consider these ideas from the Administration for Community Living.
- Avoiding social isolation and managing anxiety (from AARP)
Guidelines from our partners at the HHS Office of the Assistant Secretary for Preparedness and Response include this great list of suggestions by AARP:
- Develop a plan to connect with family, friends or loved ones: Talk to family and friends to develop a plan to safely stay in touch during social distancing. This is especially important for people living alone.
- Limit news consumption: Take breaks from watching, reading, or listening to news stories, including social media. Hearing about the pandemic repeatedly can be upsetting.
- Care for living things: Caring for pets or plants provides a sense of purpose and improved health.
- Take care of your body: Physical activity such as walking or light stretching helps calm tension; eat healthy, well-balanced meals, and avoid alcohol and drug abuse. It is also important to get adequate sleep.
- Listen to music, find activities that bring joy: Beyond the music and activities available in the common living area shared by residents there are music events and activities online, such as free livestreamed concerts. National Public Radio is maintaining a list of Live Virtual Concerts.
- Keep your mind active: Completing puzzles (e.g., jigsaw, crossword, sudoku), reading, and engaging in art projects helps to keep the mind occupied and can improve cognitive functioning.
- Use calming techniques: Such as deep breathing, stretching, meditation, prayer, taking a warm bath or shower, or sitting with a pet.
- Find ways to laugh: Watch a TV show, or chat with a friend or family member who brings joy.
- Create short personal videos that can be shared between family and loved ones.
- Staying Connected at Home - A Resource from the Eldercare Locator and engAGED
ACL's Eldercare Locator and engAGED: The National Resource Center for Engaging Older Adults, which are both funded by ACL and administered by n4a put together these suggestions for how older adults -- and people of any age -- can prevent social isolation and loneliness while staying safe.
- Feeling Good and Staying Connected - An Activity Guide
This activity guide from the California Department of Aging has ideas that can help people of any age stay engaged. Now might be a great time to pick up that hobby you had in childhood, for example.
- Tips for connecting while social distancing
- Get smart on technology
- Video and digital communication - Comparing tools, ensuring, usability/accessibility
- The University of Maine's Center for Community Inclusion and Disability Studies has partnered with Speaking Up for Us, an organization run by and for adults who live with developmental disabilities, to release an updated resource, Planning Accessible Meetings and Conferences: A Suggested Checklist and Guide
- ODEP's Partnership on Employment & Accessible Technology (PEAT) published a "How to Pick an Accessible Virtual Meeting Platform" tip sheet. This resource provides best practices on the process of ensuring that employers' meeting platforms support full accessibility for people with disabilities.
- Disability:IN has developed a resource page on digital accessibility and other best practices for remote work.
- Rooted in Rights offers tips for making virtual meeting more accessible for people with disabilities.
- "The Big Hack," a project of the British non-profit Scope, provides an overview of accessibility features found in various video conferencing apps.
- The National Council on Aging (NCOA) has developed a detailed overview of remote video communication options titled, Tools for Reaching a Remote Audience. NCOA provides pros and cons for each tool, including Facebook Live, Google Hangouts, Zoom, and several others. Links to additional information are included in the document. This resource is a convenient first stop for people wanting to connect to each other remotely and also includes information about tools that can be used for meetings and presentations.
- Policy brief: How states are combating social isolation and loneliness
The Rehabilitation Research and Training Center on Promoting Healthy Aging for People with Long-Term Physical Disabilities, which is funded by ACL's National Institute on Disability, Independent Living and Rehabilitation Research, recently published a health policy brief on state responses to the social isolation and loneliness faced by adults with disabilities during the COVID-19 pandemic.
About COVID-19 overall
USA.gov has a directory of COVID-19 websites managed by government agencies.
- Health information from CDC
CDC's COVID-19 web page includes a number of resources, including specific guidance for:
- People at risk of serious illness from COVID-19
- Preventing spread of COVID-19 in communities
- Getting your household ready in case of an outbreak in your community
- What to do if you or someone in your household is sick
- Healthcare professionals
- Businesses and employers
- Daily life and coping
- Fact sheets for older adults, people with disabilities
- Common Questions and Answers About COVID-19 for Older Adults and People with Chronic Health Conditions, created by the Alliance for Aging Research and the National Foundation for Infectious Diseases.
- Staying Safe at Home During the Coronavirus Crisis from the Eldercare Locator and the Alliance for Aging Research.
- Accessible Vaccine Fact Sheet -It is important to create an accessible vaccine experience for people with disabilities and older adults. Here is a fact sheet that can help you understand what is central to success in making that happen.
- Preventing Elder Abuse during COVID-19
Keeping Family Together During COVID-19: A Checklist is designed to aid families avoid elder abuse involving physical, emotional and financial harm. During the 2008 Financial Crisis the housing market and economy collapsed, finances were decimated and adult children moved back in with their parents. Cases of elder abuse soared. As a result of COVID-19, there is an increased risk of similar trends. By learning from the past, we can prevent similar mistakes ahead.
Even in the most genial of families, close quarters and changes in living situations may heighten emotions, potentially contributing to family discord. Efforts can be made to reduce tensions and promote a healthy and safe environment for all. The link above, from the National Center on Elder Abuse, provides a tip sheet and checklist that will help families maintain safe and positive household relationships.
- Community-Based Testing Sites for COVID-19
HHS has partnered with pharmacy and retail companies to provide COVID-19 testing in community settings.
This website provides up-to-date information about each company's efforts to provide timely and accessible COVID-19 testing. You can schedule an appointment for testing on each company's website.
- ASPR Telehealth for Community-Based Organizations Webinar Series
The HHS Assistant Secretary for Preparedness and Response At-Risk Individuals Program has posted recordings from their Telehealth for Community-Based Organizations webinars series. The three-part series focused on implementing telehealth services to address the access and functional needs of at-risk individuals in partnership with HUD during the COVID-19 pandemic.
Part 1: Services, Payment and Partners. The first webinar of the Telehealth for Community-Based Organizations Series, Services, Payment and Partners, provided an overview of telehealth basics for community-based organizations such as public housing authorities, multi-family housing providers, aging and disability network stakeholders, and other social service providers. The webinar highlighted relevant resources and provided examples of telehealth use and lessons from the field.
Part 2: Promising Practices - Accessibility and Language Access. The second webinar of the Telehealth for Community-Based Organizations Series, Promising Practices: Accessibility and Language Access, focused on telehealth accessibility for individuals with access and functional needs and individuals with limited English proficiency. It highlighted innovative strategies for ensuring access to older adults, people with disabilities, and addressed cultural and linguistic competency when providing telehealth services.
Part 3: Addressing Barriers - Homelessness and Connectivity. The third and final webinar of the Telehealth Community Based Organizations Series, Addressing Barriers - Homelessness and Connectivity, provides information to help connect low-income and people experiencing homelessness with telemedicine services during the COVID-19 pandemic. Find out about a federal program to improve access to phone and internet services for low-income individuals.
- Resources for Veterans
The Department of Veterans Affairs is working to protect and care for veterans and their families, health care providers, and staff in the face of this COVID-19 pandemic.
Veterans with symptoms such as fever, cough, or shortness of breath should contact their local VA medical facility before visiting. Veterans also can sign into My HealtheVet to send secure messages to their VA providers or use telehealth options to explain their condition and receive a prompt diagnosis.
More resources from the VA:
- Family Resources from the American Red Cross
The American Red Cross has established a Virtual Family Assistance Center to aid people in need during the COVID-19 emergency. Volunteers are available to help you navigate available resources.
- FAQs and Resources Related to Guardianship
The National Guardianship Association has developed FAQs and provides other resources that may be useful to guardians during the COVID-19 crisis.
The National Center for State Courts, the American Bar Association, and the National Guardianship Association have released a two-page brochure addressing common questions about guardians and the COVID-19 vaccine for long-term care facility residents
- Accessible resources for people with disabilities from Georgia Tech
The Georgia Tech COVID-19 Accessible Materials for People with Disabilities project has developed a microsite with resourced for people with a variety of disabilities. New resources include a video for people with intellectual and developmental disabilities on wearing a mask the right way and an ASL video on running essential errands The project receives funding from the CDC Foundation.
Protecting civil rights
- Guidance from the HHS Office for Civil Rights
On March 28, the HHS Office for Civil Rights published OCR Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19) to ensure that entities covered by civil rights authorities keep in mind their obligations under laws and regulations that prohibit discrimination on the basis of race, color, national origin, disability, age, sex, and exercise of conscience and religion in HHS-funded programs.
The bulletin states that, “…persons with disabilities should not be denied medical care on the basis of stereotypes, assessments of quality of life, or judgments about a person’s relative “worth” based on the presence or absence of disabilities or age. Decisions by covered entities concerning whether an individual is a candidate for treatment should be based on an individualized assessment of the patient and his or her circumstances, based on the best available objective medical evidence.”
A fact sheet for health care professionals titled Safeguard Against Disability Discrimination During COVID-19 is available from the The Center for Dignity in Healthcare for People with Disabilities. A second Fact Sheet describes the rights of people with disabilities and self-advocacy tips when receiving medical care.
- Civil Rights and School Reopenings
The U.S. Department of Education’s Office for Civil Rights released a Question and Answer resource to help students, families, schools and the public understand their rights and responsibilities in remote, hybrid, and in-person educational environments, including in K-12 schools and postsecondary institutions.
The Q&A provides information on issues including:
- the rights of students with disabilities to a Free and Appropriate Public Education (FAPE) during remote learning and school reopening;
- the rights of students with undocumented status and the rights of English learners;
- students’ rights to the nondiscriminatory administration of discipline;
- protections for students against sex discrimination, including sexual and gender-based harassment; and
- schools’ responsibilities to address complaints of sexual harassment, including sexual violence, during remote, hybrid and in-person learning.
- U.S. Department of Justice letter on nondiscrimination protections
The Civil Rights Division of the United States Department of Justice issued a statement to ensure that victims of illegal discrimination know where to turn when their civil rights are violated.
- Equal employment and other labor-related resources
- The U.S. Equal Employment Opportunity Commission (EEOC) has developed, "What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws.” This resource provides updated technical assistance on COVID-19 questions arising under federal equal employment opportunity laws.
- The U.S. Department of Labor has developed a resource page to help workers and employers prepare for the COVID-19 virus. USDOL's Office of Disability Employment Policy has also compiled a list of disability-specific COVID-19 resources.
- Know your rights during the COVID-19 pandemic
The National Disability Rights Network has created a video series on the rights of people with disabilities during the COVID-19 pandemic and what to do if they are violated. The series includes:
- Training for healthcare triage teams: Preventing discrimination against people with disabilities
As part of the Disability Awareness and Sensitivity in Healthcare (DASH) initiative, the University of Miami’s Mailman Center for Child Development has created a rapid response team training for triage team members who are faced with making resource allocation decisions during shortages (e.g. ventilators, etc.). This brief training details how to prevent discrimination against people with disabilities during a public health emergency. It covers actions that triage team members and institutions can take to protect patients with disabilities, and it reviews tips for effective communication and the provision of accommodations. While this training is intended for members of triage teams who will be involved in making resource allocation decisions, others may also benefit from reviewing this content.
- Resources from ACL's Center for Dignity in Healthcare
The Center for Dignity in Healthcare for People with Disabilities has developed a webpage with a host of COVID-19 related materials.
Resources for Everyone
The COVID-19 situation is fast-moving, and what people need to know is changing fast as well. In the interest of providing information as quickly as we can, we are sharing resources created by our partners in the aging and disability networks and non-governmental agencies when a comparable resource from a government source does not exist. This does not constitute endorsement for one organization over another or indicate support for opinions expressed by the organizations.
- Accessing Rental Assistance
The American Rescue Plan includes billions of dollars in federal rental assistance for renters who are behind on housing costs, as well as landlords who have struggled during the pandemic. Right now emergency rental assistance is available across the country through locally-run programs. The CFPB has developed a tool to help renters and landlords look up rental assistance in their area and apply for assistance. The Rental Assistance Finder is designed to help tenants and landlords take advantage of emergency rental assistance that can be used to cover rent, utilities, and other housing costs. Ultimately, the goal is keep people in their homes. The CFPB also released a new toolkit to help you spread the word about the program.
Many individuals face barriers to accessing rental assistance funds, including lack of knowledge of the programs available, internet connectivity issues, language access issues, and difficulty navigating overly burdensome paperwork. A training from ACL's National Center on Law and Elder Rights can help advocates learn more about how to help older adults navigate these issues. The training, Emergency Rental Assistance Programs and Other Tools to Prevent Evictions of Older Adult Tenants, and the Chapter Summary that accompanied the training are both now available.
The CFPB issued an enforcement compliance bulletin and policy guidance related to issues that may arise with inaccurate consumer reporting of rental information. As government interventions established during the pandemic (e.g., CDC moratorium, CARES Act funding, rental assistance) begin to expire, CFPB notes that renters are at increased risk of eviction. CFPB has created a one-stop housing insecurity landing page for renters, homeowners, and struggling landlords in collaboration with other federal housing agencies and a housing insecurity media toolkit to assist organizations with the dissemination of relevant information.
- For family caregivers
COVID-19/Emergency Preparedness Resource Guide for Kinship Families and Grandfamilies is a document that was assembled by ACL staff to provide information on, and links to, a variety of resources for families in which children are raised by their grandparents, other extended family members, or adults with whom they have a close family-like relationship.
State Medicaid home- and community-based services can provide critical education, counseling, and training to family caregivers of older adults. The National Academy for State Health Policy has created a new interactive map capturing how each state’s Medicaid waivers addresses training and counseling services for family caregivers.
Providing and Receiving Respite Care Safely During the COVID-19 Pandemic --- Voluntary National Guidelines for Respite Care Agencies, Providers, Family Caregivers, and Respite Care Recipients.
- Should I Take My Loved One Home During the COVID-19 Crisis? is a checklist of considerations from the National Center on Elder Abuse and the National Consumer Voice for Quality Long-term Care.
- “Let’s Talk COVID-19” is a guide created by the Washington State Council on Developmental Disabilities to help family, friends, and care providers of people with developmental disabilities as they navigate conversations about COVID-19.
- These suggestions for family members and friends who support people living with Alzheimer's disease and similar illnesses were put together by the Emory University Goizueta Alzheimer's Disease Center. They also may be helpful for people providing support to loved ones for any reason.
- The Family Caregiver Alliance is collecting COVID-19 resources and articles for family caregivers.
- Generations United has produced a COVID-19 fact sheet with information to help grandfamilies stay healthy, informed and connected during the COVID-19 pandemic.
- The ARCH National Respite Network and Resource Center is collecting resources on respite in the time of COVID-19.
- The Caregiver Action Network has developed a resource, Tips for Family Caregivers and COVID-19.
- FAQs about guardianship issues during COVID-19 from the National Guardianship Association, in conjunction with the ABA Commission on Law and Aging and the National Center for State Courts. Also available in Spanish. (Updated June 16)
- For people with intellectual and developmental disabilities and self-advocates
- The Association of University Centers for Excellence on Disability (AUCD) has published answers to frequently asked questions on COVID-19 vaccine distribution considerations for the disability community.
- A COVID-19 Vaccination Fact Sheet is available in two formats from the Autistic Self Advocacy Network (ASAN). The Easy Read Edition is available with accompanying graphics. Click here to download the Plain Language version of the COVID-19 Fact Sheet without accompanying graphics.
- The Self Advocacy Resource and Technical Assistance Center (SARTAC) has released an FAQ document titled COVID-19 Vaccine Information in Plain Language.
- Fact sheet from the Center for Dignity in Healthcare for People with Disabilities that describes the rights of people with disabilities and self-advocacy tips when receiving medical care, particularly during COVID19.
- The ACL-funded Self-Advocacy Resource and Technical Assistance Center (SARTAC) and Green Mountain Self-Advocates have created a series of plain language resources for people with developmental disabilities:
- COVID-19 Plain Language Guidance for Employees with Developmental Disabilities describes many of OSHA’s rules to protect workers from COVID-19 and includes information and tools to use to make a decision about going out in public during the COVID-19 pandemic.
- Information on COVID-19: Available in English and Spanish.
- Tips for working with direct service providers/support staff during COVID-19.
- Words to Know About the Coronavirus
- The Washington State Developmental Disabilities Council worked with self-advocate Ivanova Smith to create “What in the World is Going On? Plain talk for Pandemic Times.”
- The Michigan Developmental Disabilities Institute at Wayne State University has compiled self-care resources addressing physical, mental, emotional, and spiritual well-being
- University of North Carolina: Supporting Individuals with Autism Through Uncertain Time
- People First WIsconsin has videos with fun things to do online and tips to stay healthy during the coronavirus pandemic.
- The California State Council on Developmental Disabilities has fact sheets for people with disabilities, including:
- "Back to SCOL" Decision Guide for Families
Parents of children with disabilities are facing difficult decisions about how to keep their children safe and learning. To help, Stanford University has developed a Back-to-Safe Communities of Learning (SCOL) Decision Guide in English and Spanish. The tool was designed with and for parents of children with special healthcare needs based on input from public-health experts, parents, and health providers. It is meant to serve as a conversation starter and to guide discussion between a parent and a trusted advisor, such as a pediatric health provider.
- NCAPPS Person-centered tool to help older adults and people with disabilities communicate needs and preferences.
ACL's National Center on Advancing Person-Centered Practices and Systems has developed a Health Care Person-Centered Profile to assist people with disabilities, older adults, and others to communicate their needs and preferences with hospital and other health care staff. During the COVID-19 pandemic, people with communication, comprehension, and behavioral challenges may face the possibility of a hospital visit without significant others or usual supporters present. To address the heightened challenges this poses, a group of experts in person-centered planning developed a tool that people and their families and caregivers can fill out and share with medical staff upon hospital intake or care site transfer.
The tool has two pages: a Health Care Information sheet for capturing brief and vital information about the person’s health status and a Health Care Person-Centered Profile for describing who the person is, what is most important to the person, and how best to provide support—vital information that can help medical staff provide more tailored and person-centered care.
The Health Care Information Sheet also has a section for detailed contact information to help medical staff reach a person’s emergency contact or legal representative. It contains a section for indicating whether advance directives are in place and where those documents can be found.
The tool and accompanying instructions and examples were jointly developed by experts from Support Development Associates and the University of Missouri Kansas City Institute for Human Development Charting the LifeCourse Nexus, and by Janis Tondora from the Yale University Program for Recovery and Community Health.
- Cross-disability resources from the the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
- Complex communication needs: Resources and tools for people who are deaf, hard of hearing or DeafBlind, or who do not use speech; medical professionals, and others who provide support
This web page includes resources to help people with complex communication needs prepare in case emergency assistance is needed, as well as information and tools for caregivers and healthcare providers. It was created by the Rehabilitation Engineering Research Center on Augmentative and Alternative Communication at Penn State University, which is funded by ACL's National Institute on Disability, Independent Living and Rehabilitation Research.
Tools to use when verbal communication is not possible due to an individual's disability, injury, or shock.
- These printable communication boards from Temple University Institute on Disabilities feature pictures, words and a "keyboard." They also include a planning page to record key information that may be needed during an emergency.
- The UConn Center for Excellence in Developmental Disabilities developed a flipbook that provides strategies and tools to help emergency/medical personnel communicate with people who do not use speech. Aids include an emergency QWERTY board that can be used to spell words by pointing, pain charts, sign language basics, and icon-based tools. It can be printed out and hung inside emergency vehicles for easy reference on the job.
- The Patient-Provider Communication Forum, with the support of the United States Society of Augmentative and Alternative Communication (USSAAC), is providing free communication supports for people with disabilities and their health care workers.
For people who are deaf, hard of hearing or DeafBlind
This web page provides tips to help people who are deaf, hard of hearing or DeafBlind communicate at the hospital while COVID-19 precautions are in place. It includes a list of smartphone applications and a printable medical placard that may be helpful. It was created by the Deaf/Hard of Hearing Technology Rehabilitation Engineering Research Center, funded by ACL's NIDILRR,
- For people with paralysis and those serving people with paralysis
The Paralysis Resource Center, an ACL grantee, created their a COVID-19 resource for people living with paralysis. The fact sheet was updated on December 14 to include additional information on vaccinations.
Other resources from the Paralysis Resource Center include:
A report on the COVID - 19 Impact on State Pilot Grantees and Subawardees and an associated infographic that provides a dashboard view of self-evaluation and application process metrics.
- Resources for LGBT Older Adults and People Living with HIV
- The ACL-funded National Resource Center on LGBT Aging has compiled tips and resources for LGBT elders and those living with HIV (PDF)
- SAGEConnect seeks to link LGBT elders with their broader community during the COVID-19 pandemic in order to reduce isolation and promote well-being.
- The CDC provides information for people living with HIV.
- Behavioral health resources to help during social distancing and quarantine
- SAMHSA's Tips for Social Distancing and Isolation. This tip sheet describes feelings and thoughts people may have during and after social distancing, quarantine, and isolation. It also suggests ways to care for behavioral health during these experiences and provides resources for more help. (Published Mar. 16, 2020)
- SAMHSA's Disaster Distress Helpline provides 24/7 crisis counseling and support to people experiencing disaster-related emotional distress.
- Deaf/Hard of Hearing instructions:
- Text TalkWithUs to 66746
- Use your preferred relay service to call the Disaster Distress Helpline at 1-800-985-5990
- TTY 1-800-846-8517
- Deaf/Hard of Hearing instructions:
- SAMHSA Virtual Recovery Resources describes resources that can be used to virtually support recovery from mental/substance use disorders and to help local recovery programs create virtual meetings.
For Medicare, Medicaid, Social Security and SSI beneficiaries
- Medicare highlights
Medicare.gov's COVID-19 page includes information for beneficiaries. A few key things:
- Medicare covers the lab tests for COVID-19. You pay no out-of-pocket costs.
- Medicare covers all medically necessary hospitalizations. This includes if you're diagnosed with COVID-19 and might otherwise have been discharged from the hospital after an inpatient stay, but instead you need to stay in the hospital under quarantine.
- At this time, there's no vaccine for COVID-19. However, if one becomes available, it will be covered by all Medicare Prescription Drug Plans (Part D).
- If you have a Medicare Advantage Plan, you have access to these same benefits. Medicare allows these plans to waive cost-sharing for COVID-19 lab tests. Many plans offer additional telehealth benefits beyond the ones described below. Check with your plan about your coverage and costs.
- Economic Impact Payments
Important Information for Residents of Long-Term Care Facilities
In June, the IRS clarified that Economic Impact Payments belong to recipients, not nursing homes or care facilities. This policy is applicable to the second round of Economic Impact Payments.
Congregate residential settings are not permitted to take Economic Impact Payment money, even if a facility believes a resident owes money to the facility. Nor may a facility require an individual to allow it not the individual to manage and/or spend the money.
If you, or someone you care about, lives in an assisted living facility or nursing home, the FTC explains here that the money is meant for the PERSON, not the place they might live.
Economic Impact Payments and Eligibility for Federal Programs
Economic Impact Payments are not income, and are not a countable asset for the 12 months following the month of receipt. Accordingly, they are not counted towards eligibility for -- or amount, duration, or scope of -- a public benefit like SSI, Medicaid, or SNAP. As a corollary, transfer of assets provisions do not apply.
Second Round of Economic Impact Payments
The Coronavirus Response and Relief Supplemental Appropriations Act of 2021 created a second round of Economic Impact Payments for millions of Americans. As with the first round, payment will be issued based on the information the IRS has on file for your 2019 tax return, information provided using the IRS' non-filer or "Get my Payment" tools, or information provided by a federal agency issuing benefits such as the Social Security Administration, Veteran Affairs, or Railroad Retirement Board.
Direct deposits began on Dec. 29, and paper checks were mailed on Dec. 30. Pre-paid debit cards (EIP Cards) are being issued this month. You can get more information about the payments in this FAQ by the IRS. More information about EIP Cards is available at EIPCard.com, which has been updated for the second round of economic impact payments. You also can check the status of your payment online.
Important Notes for Social Security beneficiaries:Eligible Social Security (including SSDI and SSI), Veterans Administration, and Railroad Retirement beneficiaries who don’t normally file taxes will automatically receive economic impact payments for eligible adults. Economic Impact Payments were an advance payment of the Recovery Rebate Credit. If you did not receive your Economic Impact Payment for yourself or an eligible child, you may be eligible to claim the credit by filing a 2020 1040 or 1040-SR for free using the IRS Free File program. Economic impact payments will not be counted as income for SSI recipients, and the payments are excluded from resources for 12 months.
SSI Recipients and Economic Impact Payments (Update from NCLER 5/4/2021)
Supplemental Security Income (SSI) recipients who do not typically file a tax return should have received their third economic impact payment (EIP) automatically in April 2021. Those who receive their SSI benefits electronically by direct deposit or Direct Express Card should have received their EIP in the same way around April 7. Those who receive their monthly SSI benefits by check in the mail were mailed paper check EIPs beginning April 9.
The Social Security Administration (SSA) will not count any of the EIPs as income for SSI recipients, and the payments are excluded from resources for 12 months after receipt. Many SSI recipients received their first EIP under the CARES Act in May 2020. They are now approaching the end of the 12-month exclusion period for the first EIPs starting on June 1, 2021, when any remaining CARES Act EIP funds they still have which puts them over the $2,000 resource limit ($3,000 for an eligible couple) will be counted as a resource, and they will lose their eligibility for SSI for that month. SSI recipients and their payees must take care to be sure they have spent down their CARES Act EIP funds before 12 months have passed since they received the payment. Since EIP funds are not the same as SSI benefits, individuals are not limited in what they can spend these funds on and can spend down on whatever they wish, including on gifts and charitable contributions.
Additional details from the National Center on Law and Elder Rights update can be found HERE.
Information about Stimulus Payments and Representative Payees
The National Center on Law and Elder Rights has issued an FAQ document that answers questions about stimulus payments and representative payees. SSA has also provided answers to common questions about representative payees and Economic Impact Payments.
- Medicare Beneficiary Q&A: Avoiding Medicare Scams
Scams related to the coronavirus, also known as COVID-19, are rapidly increasing as the public health emergency develops. Scammers are targeting older adults and those with serious long-term health conditions who appear to have a higher risk for serious illness from COVID-19. Fraudsters are attempting to bill Medicare for sham tests or treatments related to the coronavirus and are targeting individuals to illegally obtain money or Medicare numbers.
ACL's Senior Medicare Patrol (SMP) program wants Medicare beneficiaries to have the most up-to-date information on what Medicare covers and when. This document from the SMP Resource Center provides answers to the most commonly asked questions regarding Medicare’s coverage related to COVID-19.
- FEMA Funeral Assistance Program
The COVID-19 pandemic has brought overwhelming grief to many families. At FEMA, our mission is to help people before, during and after disasters. We are dedicated to helping ease some of the financial stress and burden caused by the virus.
Under the Coronavirus Response and Relief Supplemental Appropriations Act of 2021 and the American Rescue Plan Act of 2021, FEMA is providing financial assistance for COVID-19 related funeral expenses incurred after January 20, 2020.
On June 29, 2021, FEMA amended the funeral assistance policy to assist with COVID-19 related fatalities that occurred in the early months of the pandemic.
This policy change will allow applicants to submit a statement or letter from the death certificate’s certifying official, medical examiner, or coroner, that attributes the death to COVID-19 fatalities that occurred between Jan. 20 and May 16, 2020.
- Tracking states' Medicaid Appendix K Waivers
In response to the COVID-19 crisis, states are using Medicaid Appendix K waivers to incorporate flexibility into their home- and community-based services to ensure access to long-term services and supports during the crisis. NASHP has launched an interactive map that tracks states’ use of Appendix K waivers to modify services for older adults and their family caregivers.
- ACL resource on testing access and coverage
Testing is an important way to help control the spread of COVID-19. Early detection through a positive test can identify people who need care so they can get treatment and don’t pass the virus on to others. This resource developed by ACL provides an overview of COVID-19 testing, including when you should get tested, where tests are available, and who pays.