Pain management and palliative care are often difficult to access for people with both intellectual and developmental disabilities (IDD) and dementia. This webinar uses recent work from the International Summit on Intellectual Disability and Dementia, which defined advanced dementia, proposed how palliative care services (including hospice) may be used and made recommendations for completing advanced directives and advance care planning prior to the extensive progression of dementia. Case examples will help illustrate the value of service integration efforts between intellectual disability and palliative care providers, specialized training for caregivers on end-of-life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.
Please join the National Alzheimer's and Dementia Resource Center for the next webinar in the series on April 18 at 1:00 PM Eastern for one hour.
Participants in the webinar will be able to:
- Identify three ways in which palliative care may be helpful for people with IDD and dementia and their families;
- Understand at least four differences in the experience of end of life for people with IDD and dementia;
- Identify differences in the experience of advanced dementia for people with IDD and dementia as compared to others with dementia; and,
- Understand three approaches to increasing participation of people with IDD and dementia in the development of their own advanced directives.
The American Society on Aging is hosting this webinar, which is part of the National Alzheimer's and Dementia Resource Center webinar series sponsored by the Administration for Community Living.