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Paralysis Resource Center (PRC)

National Paralysis Resource Center

The mission of the national Paralysis Resource Center (PRC) operated by the Christopher & Dana Reeve Foundation is to improve the quality of life for people living with paralysis through grants, information, and advocacy. The PRC provides comprehensive information and navigation for people living with spinal cord injury, paralysis, and mobility-related disabilities and their families. Resources include information and referral by phone and email in multiple languages (including Spanish); a peer and family support mentoring program; a military and veterans program; multicultural and underserved populations outreach services; quality of life grants; and a national website with an online community.

Learn about another ACL program funded by NIDILRR: Model Systems Knowledge Translation Center: Spinal Cord Injury.

Project Goals

  1. A resource center with dedicated information specialists; a resource-rich website containing customized materials including fact sheets, Paralysis Resource Guide, and educational and health promotion videos, booklets and wallet cards, all available at no charge to the public.
  2. A comprehensive outreach program dedicated to increasing the quality of life of individuals from underserved and minority communities including the African American, Native American, Hispanic, and Asian American populations. Other underserved populations which the PRC assists include people who are lesbian, gay, bisexual or transgender (LGBT), rural residents, people with limited or no English proficiency, those living in poverty, youth, seniors, the incarcerated or formerly incarcerated, individuals with substance abuse disorders, homeless individuals, those who are uninsured or underinsured, victims of abuse or crime,  and people living with paralysis who have multiple co-occurring disabilities including psychiatric, emotional or sensory disabilities.
  3. The national Peer and Family Support Program provides certified trained peer mentors to assist individuals living with paralysis and related mobility impairments, their family members, and caregivers.
  4. A national Quality of Life program that awards grants to paralysis-focused nonprofit, community-based organizations so that they may implement programs aimed at improving the health, wellness, and independence of people living with paralysis and other mobility impairments, including a High Impact Innovative Assistive Technology grant category, making grants to state programs funded through the State Assistive Technology Act Program, and funding to support efforts to transition people living with paralysis from nursing homes to community living, respite care, and emergency preparedness.
  5. National surveillance that increases understanding of the true impact of paralysis by disease category, injury, and quality of life indicators that are used to shape and revise PRC programs and services, as well as provide accurate and timely information to other disability organizations, including federal agencies.
  6. A public policy program that provides outreach and education to elevate the voices of people living with paralysis and their families through education and outreach efforts in the areas of community-based long-term services and supports, enhanced family caregiver support, health insurance, and access to rehabilitation technologies.
  7. A Military & Veterans Program (MVP) to include resources and community connections for service men and women, as well as veterans living with paralysis, whether through combat-related, service-related, or non-service-related events. The PRC serves veterans and military personnel who served in any era.

Authorizing Legislation

See this page for information about the Christopher and Dana Reeve Paralysis Act.

Organization

Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Paralysis Resource Center

Grant Number

90PRRC0002

Contact

Margaret Goldberg, Vice President, Policy and Programs
Phone: (973) 379-2690 Ext 7206 or (800) 225-0292
Email: mgoldberg@christopherreeve.org

Award Amount

$6,511,661

Project Officer

Elizabeth Leef
Phone: (202) 475-2482
Email: Elizabeth.leef@acl.hhs.gov

 

Paralysis Resource Center State Pilot Program Grants

University of Kentucky Human Development Institute Receives Grant to Help Serve Individuals with Paralysis

July 12, 2018 -- The University of Kentucky Human Development Institute (HDI) has received a three-year grant totaling $600,000 from the Administration on Community Living. The project, Wellness Edge, is a Paralysis Resource Center State Pilot program grant. It will build connection within local communities to enhance and facilitate access to recreational programs to better serve people with paralysis and their support networks.

This fall, Wellness Edge will provide grants of up to $25,000 to community organizations that provide organized activities that are intentionally designed to benefit individuals, groups or communities. Chithra Adams, who will lead the project at HDI, said, "I am really excited to launch this effort for Kentucky. It will provide opportunities to develop new community partnerships and stimulate innovative ways to better serve people with paralysis and their networks of support."

Assisting Adams in the project are Jason Jones, founding member of the Kentucky Congress on Spinal Cord Injury, and Lindsey Mullis, HDI’s health and wellness director. This team will provide technical assistance and collect data that will ultimately help improve health outcomes for people with paralysis and build stronger, more inclusive communities.

Community grant applications will be available on the HDI website (www.hdi.uky.edu) in August.

An estimated 5.4 million people live with paralysis in the United States. The leading causes of paralysis are stroke, spinal cord injury, and multiple sclerosis. People impacted by paralysis are more likely to have health risk factors, such as being overweight, smoking and not being active; which put them at greater risk of developing secondary conditions such as cardiovascular disease and diabetes.

Texas State Independent Living Council Receives Federal Grant to Serve Texans Living with Paralysis in Rural Areas

December 14, 2018 -- The Texas State Independent Living Council (SILC) has received a three-year cooperative agreement from the Administration on Community Living to assist the needs of over three million Texans living with disabilities. The Virtual Independent Living Services Project is a Paralysis Resource Center State Pilot program with the goal to build supports and services to Texans with disabilities living with paralysis in unserved or underserved areas of the State.

February, 1, 2019, Texas SILC will award up to five Virtual Independent Living Services grants of up to $40,000 to community-based disability organizations to leverage a tele-health platform to provide Independent Living Services to Texans living with paralysis. Community grant applications are available on Texas SILC’s website at: https://www.txsilc.org/projects/vils.html.

An estimated 5.4 million individuals live with paralysis in the United States. The leading cause of paralysis is stroke, spinal cord injury, and multiple sclerosis. The purpose of the project is to bring Independent Living Services to Texans living in rural or underserved areas of the state. Texas SILC is looking forward to building community partnerships and will be accepting applications for the project until 5:00 pm Central Standard Time, Tuesday, January 22, 2019.

Texas SILC is a nonprofit organization federally authorized under the Rehabilitation Act of 1973 and reauthorized by Workforce Innovation and Opportunity Act of 2014 (WIOA) to provide a strategic framework for Independent Living Services in Texas.  WIOA provided the SILC resource development authority to support the State Plan for Independent Living. The Texas SILC is led by a Governor-appointed Council. More information about the Texas SILC and its initiatives may be found on its website at: www.txsilc.org.

“The Virtual Independent Living Services Project is an innovative project that further unites Independent Living Services to Texans living with paralysis in unserved and underserved areas of our vast Lone Star State. The Administration on Community Living through this cooperative agreement will build upon a coalition of direct service providers that will construct a virtual bridge that unites Texans living with paralysis across Texas,” said Texas SILC Chairman Colton Read.

Inquiries regarding the Virtual Independent Living Services Project may be directed to: VILS@txsilc.org.

 


Last modified on 01/11/2019


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